Monday was full of hustle and bustle for Amanda......her peaceful slumber was disrupted this morning by a nice warm shower.
And then after a little rest, the physical therapy ladies came by.....
I'm almost positive that her expression means YOU'VE GOT TO BE KIDDING ME! She did make it a few yds. down the hallway assisted with a walker, but she had to ride in the wheeled chair with the therapy lady back to the room; she was just too tired. I'm so proud of her.And then this afternoon she received a beautiful prayer quilt from our friends at Good Shepherd...I'm so amazed by the thoughtful generosity. After a short, wakeful time where I read her a story and talked to her for a bit, she cozied up under the quilt where she was literally wrapped in prayer. (of course, this was after she managed to pull our her NG tube for feeding and get a new one put in)
FIGHT SPUNKY MONKEY FIGHT!
3 comments:
Oh Joy....sigh....my heart is swollen with so many emotions right now...But most of all, as a mom, my tears are for you. I am on my knees praying for you, friend. How do you stay so strong? I know you have to for Amanda, for Collin, for Maggie, Sean and Ian, but geez oh man! I hope you have carved out pockets of time and space for yourself to let your guard down.
I have prayer warriors from all over the country praying for your entire family. Your blog and updates are invaluable to them--they are encouraged each time I send an update. Thank you for including all of us on your journey.
We love you all,
-the McGuire's
Joy,
We are thinking of Amanda and your family right now. Praying that that cute little girl wakes up bright and happy. She is such a sweetheart. Thanks for the pictures and updates. We love you guys.
The Phelps
Joy,
I am so sorry about what your and your family and your precious baby are going through. I am praying for you all. Healing for Amanda, peace and strength for the rest of you. Tonight I joined a prayer vigil on Facebook for Amanda, I read that she is experiencing cerebellar mutism. Well this news especially struck me very personally and I wanted to reach out to you to let you know that I am personally caring for my brother who suffered a massive stroke 6 months ago. The part of his brain that governs speech died, leaving him with a condition called Aphasia. I researched cerebellar mutism on line and as far as I can tell they are quite similar. My brother has cannot speak and I have learned a whole new world of non verbal language. I know that prayer is one of the things your family needs most right now, but I also found quite a bit of comfort from people writing to let me know how much they cared about what we are going through. I would love the opportunity to come pray for Amanda "hands on" and I would also love to share with you some of the things that have helped us communicate if you would like. Continuing in prayer for your family
Sharon Frost, mom on Lindsey Frost at MTV. 949-292-5161 slhfrost@cox.net.
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