Monday was full of hustle and bustle for Amanda......her peaceful slumber was disrupted this morning by a nice warm shower.

And then after a little rest, the physical therapy ladies came by.....I'm almost positive that her expression means YOU'VE GOT TO BE KIDDING ME! She did make it a few yds. down the hallway assisted with a walker, but she had to ride in the wheeled chair with the therapy lady back to the room; she was just too tired. I'm so proud of her.

And then this afternoon she received a beautiful prayer quilt from our friends at Good Shepherd...I'm so amazed by the thoughtful generosity. After a short, wakeful time where I read her a story and talked to her for a bit, she cozied up under the quilt where she was literally wrapped in prayer. (of course, this was after she managed to pull our her NG tube for feeding and get a new one put in)

FIGHT SPUNKY MONKEY FIGHT!

ONE MONTH AGO.....she turned EIGHT; a spunky smily girl full of smiles and surrounded by presents.


Today she is surrounded by wires and prayers. And I'm searching for my spunky smily girl.


No matter what I'm right by her side......

SHOWERED WITH LOVE
That's what this little girlie is --
and this doesn't even begin to show the extra cards from assorted classes at school and theatre friends, more gifts that we are saving until she wakes, and the silent prayers that everyone has held in their hearts.

These next two pictures are from Tuesday afternoon, post op. She handled everything well; she is having a hard time waking up completely from the anathesia but she is responding to neuro-assessments and will nod her head slightly to answer questions.

her sweet little face was a bit swollen and she battled a temperature for a while too. I know she's a fighter; I just don't like her looking like a boxer.
And here she is today -- looking less swollen but still trying hard to wake up. So hard in fact that her thrashing and tube pulling got her strapped into these arm things the nurses like to call 'No-nos'. Basically they are soft and don't let her bend her arms to grab at things; a lot easier than the constant "NO, NO hold your animal" that I said all morning.

GREAT NEWS....the neuro-surgeon reviewed her post-op MRI (from today) and it looks great. He doesn't see any more tumor and said he will have another radiologist review it just to confirm. HALLELUJAH!!!!!!!!
Next step, pathology results.
For now, I long to hear my sweet peanut say 'I'm hungry!'

Monday - November 2, 2009 --- a quiet, restful day for Amanda. Her ICP pressure was down consistently so the 1st surgery was a success. She still has pain and doesn't want any TV noise or much light, but she is eating a little and is being showered with loads of love and prayer.

On Sunday, CHOC has a radio station that they run in the afternoon (& a couple of times during the week). Amanda got a visit from the Radio Lollipop folks; they brought her gifts and crafts; she enjoyed watching the radio show on the TV and seeing the volunteer prank call down to the station from her room.

Today, another surprise visit........from the therapy dog, Missy. She is a 2-1/2 yr. old Sheltie who is just the sweetest, most gentle little dog. Amanda was quiet but just loved it. The dog liked licking Amanda's hand and Amanda just pet her a lot. (she REALLY misses Fritz)

And this picture is of the huge basket of yummy goodness that she got from family in Ohiothis is just a little taste of the unbelievable cards, letters, pictures, gifts, and FOOD that we are receiving. Our family is very blessed to be surrounded by such giving people.

At this point, we are going to need a small U-Haul just to get it all home.

What a difference a day makes.......
24 hours ago she looked like this; tossing me a thumbs up

And this morning; painting rocks

And stealing Mommy's new socks

And now, her little head hurts and she just wants to be trick-or-treating....


BUT she loves her new purple sparkly friend!

Loooooooong, exhausting, emotional day.......
Amanda was sent for a CT scan. The results came back abnormal, showing lots of fluid and a mass of some sort. She then went to MRI. Amanda is a rockstart patient! She laid still for the MRI and didn't make a peep.
The neurosurgeon was surprised that she didn't have any other symptoms besides the occasional headache.
We don't really know what tomorrow will bring. It is basically our first step along this crazy path.
No pain today so that was good; she is mostly sad that she is 'missing' Halloween and she doesn't understand why she has to be at the hospital. She was asleep when Collin arrived tonight and I left shortly there after. My dear friend Nicole had the kids while we did the hospital trade-off and my friend Sandee is here now (from AZ) to hold down the fort during this initial madness.

I'll try to figure out the internet at the hospital so I can update more.
Thanks for all your prayers and well wishes!

About Amanda.............it all started with a routine eye exam in early Sept. The doc. saw some unusual stuff at the back of her eyes so he wanted me to come back for some retinal photos. Fast forward to Wed., 10/28 --- she had her eyes dialated and the retinal shots taken. The doc. saw what looks like swelling at the back of her eyes (more so on the left side). He gave me an emergency referral letter that I'm taking with me to the ER tomorrow. He doesn't want to me to have to jump from one specialist to another (like insurance likes you to do); that could takes weeks and he doesn't want me to wait on this.

She does complain of headaches which is a symptom that has been on and off for a while and her vision tested out fine overall. Right now she is her normal silly self -- eating well, sleeping well, auditioning for A Christmas with Scrooge -- she is a little confused as to why we have to go to the hospital for more testing, but I'm telling her that it is so we can be in one place without having to drive all over for any tests she may need.

We would appreciate any prayers and kind thoughts you have. More prayers for strength for me too --------- I HAVEN'T GOOGLED ONE MEDICAL TERM (yet)!!!!!!!

Just grand...........Maggie's swab results came back positive for H1N1. Her fever has been gone since Friday night; she has a lingering cough.

.....fingers crossed, spraying more Lysol.......

This is TRULY amazing! So cool. My kids are inspired for our school talent show, lol. Me, I'm inspired to jump for 30 seconds without wetting my pants.

So Monday night we got BOO'ed. Someone was kind enough to spread some Halloween spirit. Well, lucky for my kids to get some yummy marshmallow ghosts and some goodies to make cupcakes. Unlucky for me because it means a commitment to participate.........because my kids won't let me ignore it. I grabbed a few assorted items from the store; stuffed the buckets; and we decided which neighbors we should try to BOO!

You would have thought they were Tom Cruise in Mission Impossible.
They turned into stealth little troopers negotiating who gets to bring the bucket/ who gets to ring the bell/ should you ring before or after you put the bucket down. It was hilarious. Sean even changed into black clothing so he couldn't be detected running from the drop-off point. The 10 minutes it took to drive around and situate the car (three houses down from each drop) was absolutely hilarious. The anxious questions 'do you think they saw us? do you think they'll figure it out? do you think they'll like the stuff?' were just so funny. I'm so glad they didn't let me just bail out on participating. That's good stuff!

Oh the THINKS you can THINK......lately the kids have been venturing through Who-ville, the Jungle of Nool, and Solla Sollew in the musical Seussical. What a fun show with outrageous costumes and a fantastic set. Maggie is on junior dance team and one of the 'Middle' Sour Kangaroos (thus, the attitude in the photo); Amanda is one of the Mindy Lu's and other assorted characters; and Ian is one of the 'Max the dog's & a jungle creature. Everyone in the cast is super and has made this wild ride a ton of fun.

It seems that we have all survived this first week of school. My children were ON TIME everyday and had a nice homemade lunch everyday. (you are kidding me if I'm paying $3.75 for lunch or .75/milk daily!)

I am learning to appreciate the little things when it comes to picking them up though: a new school means very little shade and lots of fresh black asphalt- oh, how I miss our cozy shade trees at our old school; a new school means new traffic patterns that no one seems to understand; a new school means a time of adjustment for everyone. So from here on out I will appreciate the fact that although our facility has little shade it does have A/C (and I bring ice water at pick-up); I will deal with the traffic b/c at least we don't share parking with the middle school anymore; and I will be grateful that we have a principal who is open to listening to the parents and taking our suggestions into action.

And speaking of adjustments......this week I have started exercising. And I didn't die. I started a 2.5mile loop on Monday, done in 36 minutes. After my third day, I was down to 32 minutes. Add a few sit-ups and stretches and I'm hoping that my body will adjust and be less sore. Pass the Advil........

For our family, September has brought the start of school, football and Seussical (theatre). So that means pictures in front of the doorknob to show how tall they are.

The little dudes -- well, I guess they aren't so little anymore. Sean started 4th grade and Ian started kindergarten. It boggles my mind that I was pregnant with him when Maggie was in kindergarten. It also boggles my mind that THEY chose matching outfits for the first day.

And the girls -- Maggie started 6th grade and Amanda started 2nd grade.


It's my only year with them ALL IN ONE PLACE! Even though I have three pick-up times I am grateful.

It's hot here. "It's Africa hot; I don't think I'm gonna be able to stay here if it's this hot." (10 points to the person who knows where this quote is from) And I don't want to hear 'but it's a dry heat' either. IT'S HOT!!!!!!!!!!!

BUT last week I was happy to battle the temps and headed to Angels stadium...
found the Halo-cane stand (Hurricane to you regular folks) and proceeded to burn my butt and legs on the 500* seats.
Celebrating Hunter's home-run in the 1st!

WORD!
they think they are so tough!


What's a game without NACHOS.......

Icing on the cake, we won!

As our summer comes to a close we'll finish up shopping for school supplies, get the girls haircuts, get the kids eye checks.....ya know, all the usual stuff. All glamour, all the time.

However, we'll spend a bit more time at the beach just to close out the summer in CA style. Splashing in the white water.....
learning to surf
and wrestling the seaweed.

There is no doubt that raising children is challenging (especially when you have a million; wait, sometimes it feels like a million, it's really only four!). It's like a constant rollercoaster of emotions and I don't get to get off. Unlike my niece when she was 3 on the kid's coaster.....the operator stops it after one time to see if anyone wanted off.........she promptly replied 'just one time b/c I'm just a little girl.' I know that sometimes I wish I could get off this coaster.

BUT, in the meantime, there is much to learn from my children. Sean shows me daily what it means to be brave as he goes up against kids 25 pounds heavier in football; and he pummels them. Just this morning, Amanda taught me a lesson.....in how to be calm and patient. Two things I'm STILL learning. She gets nose bleeds every once in a while mostly associated with dry weather, but sometimes out of the blue. I think her last one was while we were on the ski-lift in the mountains; that was a panic point for me yet she remained calm taking it all in stride. This morning, she got a doozy of a nosebleed........it was bad.....changing the tissue every 15 seconds/all over her cheeks & little hands/dripping on her clothes. I was starting to get mildly freaked out b/c it wasn't stopping after a few minutes and it was flowing!! How did she react? She just sat there asking for help with switching tissues quickly while I held ice on her face. I was trying to wipe her face and saying 'I'm sorry if it's all over; we'll get you cleaned up when it stops. I know it's uncomfortable.' She just chimes in with "it's OK, I'm used to it remember." Wow, she's so amazing. Every child is different and I can promise you Maggie wouldn't have this reaction, lol!

Little Miss Amanda ---my independent, smart, funny, stubborn, beautiful, petite, tom-girl. I love that kid!

The age old question -- what's for dinner? It's a thorn in my side really. I try to serve a variety of things and on nights when I'm attempting to serve something new I always include a side dish I know the kids like so they will at least eat something. I actually would enjoy cooking if I didn't have to listen to the 'blah,blah,blah - whine/whine/whine' about what I'm making. I've tried letting each child pick a night and create the meal; most times he/she doesn't even eat what he/she had even suggested!

So, I've given up. I plan out a monthly meal calendar based on our insane schedule from football to theatre to meetings, etc. I might ask for suggestions or I might not. BUT 1) to have a plan makes my day a lot easier and 2) to have a plan prevents us from eating fast-food 500 times a week. It has nothing to do with whether or not the kids will eat. It's my job to provide you with healthy food; it's your job to eat it!

Now, often times this is what dinner looks like.......

in case you can't read the post-it, it says:
pork chops (oven)
stuffing (stove)
green breans (micro)
applesauce (fridge)
And that answers the question ---'How do you do it?' It's not pretty but it works. I am in love with my delay start on my oven. It's like magic. Porkchops were ready within minutes of arriving home from practice; stuffing was made and just needed to be re-heated; green beans warmed up; pour out applesauce. Ding, ding --- DINNER!

(I love my crock-pot too, but the delay start ROCKS!)

Soon after I posted about the start of football, my world came to a crashing halt. Well, my cyber world that is. My DSL modem got fried in a short power outage last week so I have been without service for a bit. I did pop in to the library to look for urgent emails and trash junk mail, but overall I wasn't online. No blog to post on or others to read. No Facebook. Nothing. But I did organize pictures so it wasn't too bad, I survived.

I thought I would post some ridiculous photos from the Music Man. I'm one of the main Pick-a-Little ladies so I get to do the hilarious 'grecian urn' stuff (if you know the show)...........these should make you laugh.



What a great group of ladies and an amazing show!

FOOTBALL

IS HERE!

So, it's August....where has the summer gone? The kids got out of school in late June. Right away, we had camping and dance recitals and the 4th in Ohio and VBS and more camping and NOW we have football. five. days. a. week. ALL football, ALL the time. (it's all good b/c I love football) Well, and then there's Music Man shows with Seussical rehearsals thrown in for good measure. Now you know where I've been. Therefore I am declaring that our August days will be more relaxing with minimal commitments and a little bit of school work tossed in. We need to be lazy because before I know it we'll be back on a school schedule with no time to be lazy.